Wednesday, 30 May 2012

Fungal Friends - How an Aspergillosis Patient Might See Things In Verse

Written by the National Aspergillosis Centre Manager Chris Harris, this poem has resulted from many conversations with many hundreds of patients

Things have been wrong for quite some time
Some days I struggle, some days I’m fine
I’m breathless, tired and ask for tests 
To see what is happening with my chest
They tell me I have some fungal spores
But do not understand the cause
So I ask around and make a fuss
And discover a fungus called Aspergillus

I use the clever search engine to find out the facts
Which directs me to experts at a place called “NAC”
I ask my doc if he will send me there 
Though still want him to share my care
He agrees it would be nice to be helped 
To unravel the mystery that has developed
So he sends me off to visit the team
And asks me to tell him what knowledge I glean

I meet the doc and tell my tale 
Of how my strength continues to fail
Fit as a fiddle I used to be
Now I have trouble making tea
My chest is tight and I cough a lot
The nurse then tells me to spit in a pot
For some special test to see what it grows
Funny named fungus that few of us knows

What did I do in my fitter days?
Cos now they are spent having frequent x-rays
Blood tests are taken for more special tests
Which leaves my arm in need of a rest
But although I feel like I want to curse
I would be lost without my specialist nurse

The doc keeps an eye on my CT scan
To check and see if my cavity has gone
He sends me away with a cocktail of medicine 
And they ask me to fill their questionnaire in

At the start of the month I can meet others like me
To share our experiences over a nice cup of tea
Speakers and staff tells us the latest news 
And our friends on the web are asked their views
It’s good to know that fungus is widely debated
And makes my family and me feel less isolated
So while I know I have to keep coming back
I’m so glad to be part of the place called “NAC”

Chris Harris May 2012


We will be holding an Aspergillosis Patients Support Meeting on 7th June 2012 (a week tomorrow) where a professional poet will be giving a talk on creative writing and Chris will be doing a reading of her work.
To listen in and text chat go to http://www.aspergillus.org.uk/newpatients/monthlymeetings.php

1 comment:

TONYA LEWIS said...

Ha My Name Is Tonya Lewis I Also Have Aspergillosis I Had It For A Couple Of Years Just A Couple Of Months Ago I Was In The Hospital For Coughing Up Blood That Was The First Time That,That Had Happening On Medicine Now V-Fend-Voricolaz I Might Spelling The Medicine Wrong But I Know It Is V-FEND I Take 400mgs.A Day Feeling Fine Goes To My Doctors Appointment Aways Doing Blood Work. So Glad To Talk About To Someone That Knows What I Am Going Though.This Is My Email Address T.LEWIS0430@YAHOO.COM

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